The little dog that survived so much finally succumbed to what turned out to be an intracranial bleed. We did everything we possibly could, gave her every chance to recover, but it was more than even the amazing Ms. Rin could work through. There will be future chapters of TheBikerDog and I have many hours of ride footage, feeding tube adventures and candid photos from the amazing life of Rin that I have not shared yet. So stick around - I’ll start sharing those as soon as I wrap my brain around the fact she is actually gone. Right now… it just hurts.
The little dog that survived so much finally succumbed to what turned out to be an intracranial bleed. We did everything we possibly could, gave her every chance to recover, but it was more than even the amazing Ms. Rin could work through. There will be future chapters of TheBikerDog and I have many hours of ride footage, feeding tube adventures and candid photos from the amazing life of Rin that I have not shared yet. So stick around - I’ll start sharing those as soon as I wrap my brain around the fact she is actually gone. Right now… it just hurts.
Mom’s note: WOOHOO!!!!
Mom’s note: WOOHOO!!!!
Mom, who provides a safety barrier these days to keep me from falling off the couch, got up to go potty and my brother decided that dad sitting next to me was not enough and promptly placed himself in the barrier spot. I am well loved on all sides.
Mom, who provides a safety barrier these days to keep me from falling off the couch, got up to go potty and my brother decided that dad sitting next to me was not enough and promptly placed himself in the barrier spot. I am well loved on all sides.
Today was a great day. For the first time in three weeks I was able to get my full feed at each meal without any tummy trouble! I got to have a massage @thek9bodyshop and enjoy some sniffs from the car window. I even have enough energy and appetite left to play with my puzzle!!! So what if I’m a little slower than I was - it’s still FUN!!
Today was a great day. For the first time in three weeks I was able to get my full feed at each meal without any tummy trouble! I got to have a massage @thek9bodyshop and enjoy some sniffs from the car window. I even have enough energy and appetite left to play with my puzzle!!! So what if I’m a little slower than I was - it’s still FUN!!
Maybe I’ll feel like playing with the bones again someday, but today I just want to remember.
Maybe I’ll feel like playing with the bones again someday, but today I just want to remember.
Absolute perfection.
Absolute perfection.
Happy Halloween All! I wasn’t feeling great today so all I did was wear my bat wings to my cardiology appointment. But, in honor of the day, I thought I’d share a throwback to Mom’s favorite costume from a couple years ago. (Mom’s note: Ms. Rin is slightly better by the day, but still far from herself. She is on several new meds that seem to be helping and started antibiotics today for an infected feeding tube, so hopefully that will help a lot. Meanwhile her bloodwork is a bit improved and her cardiology exam showed that we are stable on that front, so that is a bit of good news at least! Just taking things a day at a time for now!)
Happy Halloween All! I wasn’t feeling great today so all I did was wear my bat wings to my cardiology appointment. But, in honor of the day, I thought I’d share a throwback to Mom’s favorite costume from a couple years ago. (Mom’s note: Ms. Rin is slightly better by the day, but still far from herself. She is on several new meds that seem to be helping and started antibiotics today for an infected feeding tube, so hopefully that will help a lot. Meanwhile her bloodwork is a bit improved and her cardiology exam showed that we are stable on that front, so that is a bit of good news at least! Just taking things a day at a time for now!)
Snoring the day away! (Mom’s note: It has been an up and down and up again sort of weekend but all in all, she seems much much much more comfortable. She is sleeping a ton but that’s not really a surprise. Neurologic symptoms are vastly improved. We haven’t seen any head pressing or circling at all, her balance is improved significantly, and she is pacing far less frequently. On the flip side, her stomach still seems to be quite unhappy, including an episode of obvious distress Saturday that required an additional medication (Ondansetron) to ease. Fortunately we had that on hand since our cat takes it daily, and it helped tremendously. We cannot completely fast her as she cannot get her meds on an empty stomach, but we did reduce her food intake yesterday to try to give her system a break and it seemed to help. Not only did she seem to have significantly less pain/discomfort during meal times, she actually took her meds orally, something she hasn’t done all week!! We will slowly increase her intake today so she doesn’t fall too far behind in caloric intake but we’ll probably break it up into a greater number of small meals rather than rush to go back to three full meals. For the moment, we are embracing every little improvement, snuggling a lot and hoping we will continue to see more improvement from here!!)
Snoring the day away! (Mom’s note: It has been an up and down and up again sort of weekend but all in all, she seems much much much more comfortable. She is sleeping a ton but that’s not really a surprise. Neurologic symptoms are vastly improved. We haven’t seen any head pressing or circling at all, her balance is improved significantly, and she is pacing far less frequently. On the flip side, her stomach still seems to be quite unhappy, including an episode of obvious distress Saturday that required an additional medication (Ondansetron) to ease. Fortunately we had that on hand since our cat takes it daily, and it helped tremendously. We cannot completely fast her as she cannot get her meds on an empty stomach, but we did reduce her food intake yesterday to try to give her system a break and it seemed to help. Not only did she seem to have significantly less pain/discomfort during meal times, she actually took her meds orally, something she hasn’t done all week!! We will slowly increase her intake today so she doesn’t fall too far behind in caloric intake but we’ll probably break it up into a greater number of small meals rather than rush to go back to three full meals. For the moment, we are embracing every little improvement, snuggling a lot and hoping we will continue to see more improvement from here!!)
(Mom’s Note: Right now Rin is napping in her cubby and I don’t want to disturb her for a photo, so this photo is from last Sunday when she was feeling a bit more herself. I just figured you all might like an update on my girl. She ended up at the ER last night with neurologic symptoms (head pressing, circling, drooling, uneven pupils). After much testing, we have a few hypotheses on what she has going on but the one thing conclusively determined is that she is hyper coagulating (blood clotting too fast). To combat this we added a second blood thinner to her pharmacopoeia. Then, to address her ongoing GI upset we are temporarily stopping her psyllium husk in addition to having added an anti nausea (Cerenia) and a gastroprokinetic (Cisapride) yesterday with lunch. Finally, we have completely stop Gabapentin as it did not help with pain and was mucking up our ability to see what her actual neuro symptoms were. Between all of these things she has improved a lot: she is no longer head pressing or circling and she is actually lifting her head a bit. We are waiting to hear from CASE as to what is next: it may be wait and see for a few days or we may take her for a ct scan. For now, she is home and sleeping comfortably.)
(Mom’s Note: Right now Rin is napping in her cubby and I don’t want to disturb her for a photo, so this photo is from last Sunday when she was feeling a bit more herself. I just figured you all might like an update on my girl. She ended up at the ER last night with neurologic symptoms (head pressing, circling, drooling, uneven pupils). After much testing, we have a few hypotheses on what she has going on but the one thing conclusively determined is that she is hyper coagulating (blood clotting too fast). To combat this we added a second blood thinner to her pharmacopoeia. Then, to address her ongoing GI upset we are temporarily stopping her psyllium husk in addition to having added an anti nausea (Cerenia) and a gastroprokinetic (Cisapride) yesterday with lunch. Finally, we have completely stop Gabapentin as it did not help with pain and was mucking up our ability to see what her actual neuro symptoms were. Between all of these things she has improved a lot: she is no longer head pressing or circling and she is actually lifting her head a bit. We are waiting to hear from CASE as to what is next: it may be wait and see for a few days or we may take her for a ct scan. For now, she is home and sleeping comfortably.)
I don’t feel well. Mom picked me up Sunday and I was a little wobbly and funked but she thought it was just the result of a week around toddlers wearing me out. However, as this week has progressed I’ve gotten more wobbly, my stomach has been super unsettled, and my back is more sore than normal. I just generally don’t feel well! Mom took me to see Dr. Gordon yesterday for bloodwork and an ultrasound but other than slightly elevated kidney and liver values, nothing really stood out. I’ll be going back next week for more bloodwork but while they try to figure out what’s causing me to feel gross, I’m starting anti-nausea meds, a liver support supplement and some pain killers to try to at least get me on a better path!! (Mom’s note: Poor kid just wants to sleep but, in a sure fire sign she REALLY doesn’t feel well, she insists on pacing half asleep if she cannot touch me, which is a dangerous occupation when she is this wobbly. So I grabbed my laptop and spent the day curled up on the couch next to my little one so she could sleep soundly. I suspect that is where you’ll find me for the next few days. I’m really worried about her right now but hopefully most of this is a cumulative reaction to the adjustments we made a week and a half ago to try to resolve problems with recurring diarrhea in combined with missing pt for a week while we were gone and generally being worn out from the excitement of a week away from home. We have rolled back some of those changes and have several other things to try, but it is SO hard to see her feeling so miserable in the meantime. On a positive note, she has kept all of her meals and meds down today, which is a step in the right direction!!)
I don’t feel well. Mom picked me up Sunday and I was a little wobbly and funked but she thought it was just the result of a week around toddlers wearing me out. However, as this week has progressed I’ve gotten more wobbly, my stomach has been super unsettled, and my back is more sore than normal. I just generally don’t feel well! Mom took me to see Dr. Gordon yesterday for bloodwork and an ultrasound but other than slightly elevated kidney and liver values, nothing really stood out. I’ll be going back next week for more bloodwork but while they try to figure out what’s causing me to feel gross, I’m starting anti-nausea meds, a liver support supplement and some pain killers to try to at least get me on a better path!! (Mom’s note: Poor kid just wants to sleep but, in a sure fire sign she REALLY doesn’t feel well, she insists on pacing half asleep if she cannot touch me, which is a dangerous occupation when she is this wobbly. So I grabbed my laptop and spent the day curled up on the couch next to my little one so she could sleep soundly. I suspect that is where you’ll find me for the next few days. I’m really worried about her right now but hopefully most of this is a cumulative reaction to the adjustments we made a week and a half ago to try to resolve problems with recurring diarrhea in combined with missing pt for a week while we were gone and generally being worn out from the excitement of a week away from home. We have rolled back some of those changes and have several other things to try, but it is SO hard to see her feeling so miserable in the meantime. On a positive note, she has kept all of her meals and meds down today, which is a step in the right direction!!)
The little dog that survived so much finally succumbed to what turned out to be an intracranial bleed. We did everything we possibly could, gave her every chance to recover, but it was more than even the amazing Ms. Rin could work through. There will be future chapters of TheBikerDog and I have many hours of ride footage, feeding tube adventures and candid photos from the amazing life of Rin that I have not shared yet. So stick around - I’ll start sharing those as soon as I wrap my brain around the fact she is actually gone. Right now… it just hurts.
The little dog that survived so much finally succumbed to what turned out to be an intracranial bleed. We did everything we possibly could, gave her every chance to recover, but it was more than even the amazing Ms. Rin could work through. There will be future chapters of TheBikerDog and I have many hours of ride footage, feeding tube adventures and candid photos from the amazing life of Rin that I have not shared yet. So stick around - I’ll start sharing those as soon as I wrap my brain around the fact she is actually gone. Right now… it just hurts.
Mom’s note: WOOHOO!!!!
Mom’s note: WOOHOO!!!!
Mom, who provides a safety barrier these days to keep me from falling off the couch, got up to go potty and my brother decided that dad sitting next to me was not enough and promptly placed himself in the barrier spot. I am well loved on all sides.
Mom, who provides a safety barrier these days to keep me from falling off the couch, got up to go potty and my brother decided that dad sitting next to me was not enough and promptly placed himself in the barrier spot. I am well loved on all sides.
Today was a great day. For the first time in three weeks I was able to get my full feed at each meal without any tummy trouble! I got to have a massage @thek9bodyshop and enjoy some sniffs from the car window. I even have enough energy and appetite left to play with my puzzle!!! So what if I’m a little slower than I was - it’s still FUN!!
Today was a great day. For the first time in three weeks I was able to get my full feed at each meal without any tummy trouble! I got to have a massage @thek9bodyshop and enjoy some sniffs from the car window. I even have enough energy and appetite left to play with my puzzle!!! So what if I’m a little slower than I was - it’s still FUN!!
Maybe I’ll feel like playing with the bones again someday, but today I just want to remember.
Maybe I’ll feel like playing with the bones again someday, but today I just want to remember.
Absolute perfection.
Absolute perfection.
Happy Halloween All! I wasn’t feeling great today so all I did was wear my bat wings to my cardiology appointment. But, in honor of the day, I thought I’d share a throwback to Mom’s favorite costume from a couple years ago. (Mom’s note: Ms. Rin is slightly better by the day, but still far from herself. She is on several new meds that seem to be helping and started antibiotics today for an infected feeding tube, so hopefully that will help a lot. Meanwhile her bloodwork is a bit improved and her cardiology exam showed that we are stable on that front, so that is a bit of good news at least! Just taking things a day at a time for now!)
Happy Halloween All! I wasn’t feeling great today so all I did was wear my bat wings to my cardiology appointment. But, in honor of the day, I thought I’d share a throwback to Mom’s favorite costume from a couple years ago. (Mom’s note: Ms. Rin is slightly better by the day, but still far from herself. She is on several new meds that seem to be helping and started antibiotics today for an infected feeding tube, so hopefully that will help a lot. Meanwhile her bloodwork is a bit improved and her cardiology exam showed that we are stable on that front, so that is a bit of good news at least! Just taking things a day at a time for now!)
Snoring the day away! (Mom’s note: It has been an up and down and up again sort of weekend but all in all, she seems much much much more comfortable. She is sleeping a ton but that’s not really a surprise. Neurologic symptoms are vastly improved. We haven’t seen any head pressing or circling at all, her balance is improved significantly, and she is pacing far less frequently. On the flip side, her stomach still seems to be quite unhappy, including an episode of obvious distress Saturday that required an additional medication (Ondansetron) to ease. Fortunately we had that on hand since our cat takes it daily, and it helped tremendously. We cannot completely fast her as she cannot get her meds on an empty stomach, but we did reduce her food intake yesterday to try to give her system a break and it seemed to help. Not only did she seem to have significantly less pain/discomfort during meal times, she actually took her meds orally, something she hasn’t done all week!! We will slowly increase her intake today so she doesn’t fall too far behind in caloric intake but we’ll probably break it up into a greater number of small meals rather than rush to go back to three full meals. For the moment, we are embracing every little improvement, snuggling a lot and hoping we will continue to see more improvement from here!!)
Snoring the day away! (Mom’s note: It has been an up and down and up again sort of weekend but all in all, she seems much much much more comfortable. She is sleeping a ton but that’s not really a surprise. Neurologic symptoms are vastly improved. We haven’t seen any head pressing or circling at all, her balance is improved significantly, and she is pacing far less frequently. On the flip side, her stomach still seems to be quite unhappy, including an episode of obvious distress Saturday that required an additional medication (Ondansetron) to ease. Fortunately we had that on hand since our cat takes it daily, and it helped tremendously. We cannot completely fast her as she cannot get her meds on an empty stomach, but we did reduce her food intake yesterday to try to give her system a break and it seemed to help. Not only did she seem to have significantly less pain/discomfort during meal times, she actually took her meds orally, something she hasn’t done all week!! We will slowly increase her intake today so she doesn’t fall too far behind in caloric intake but we’ll probably break it up into a greater number of small meals rather than rush to go back to three full meals. For the moment, we are embracing every little improvement, snuggling a lot and hoping we will continue to see more improvement from here!!)
(Mom’s Note: Right now Rin is napping in her cubby and I don’t want to disturb her for a photo, so this photo is from last Sunday when she was feeling a bit more herself. I just figured you all might like an update on my girl. She ended up at the ER last night with neurologic symptoms (head pressing, circling, drooling, uneven pupils). After much testing, we have a few hypotheses on what she has going on but the one thing conclusively determined is that she is hyper coagulating (blood clotting too fast). To combat this we added a second blood thinner to her pharmacopoeia. Then, to address her ongoing GI upset we are temporarily stopping her psyllium husk in addition to having added an anti nausea (Cerenia) and a gastroprokinetic (Cisapride) yesterday with lunch. Finally, we have completely stop Gabapentin as it did not help with pain and was mucking up our ability to see what her actual neuro symptoms were. Between all of these things she has improved a lot: she is no longer head pressing or circling and she is actually lifting her head a bit. We are waiting to hear from CASE as to what is next: it may be wait and see for a few days or we may take her for a ct scan. For now, she is home and sleeping comfortably.)
(Mom’s Note: Right now Rin is napping in her cubby and I don’t want to disturb her for a photo, so this photo is from last Sunday when she was feeling a bit more herself. I just figured you all might like an update on my girl. She ended up at the ER last night with neurologic symptoms (head pressing, circling, drooling, uneven pupils). After much testing, we have a few hypotheses on what she has going on but the one thing conclusively determined is that she is hyper coagulating (blood clotting too fast). To combat this we added a second blood thinner to her pharmacopoeia. Then, to address her ongoing GI upset we are temporarily stopping her psyllium husk in addition to having added an anti nausea (Cerenia) and a gastroprokinetic (Cisapride) yesterday with lunch. Finally, we have completely stop Gabapentin as it did not help with pain and was mucking up our ability to see what her actual neuro symptoms were. Between all of these things she has improved a lot: she is no longer head pressing or circling and she is actually lifting her head a bit. We are waiting to hear from CASE as to what is next: it may be wait and see for a few days or we may take her for a ct scan. For now, she is home and sleeping comfortably.)
I don’t feel well. Mom picked me up Sunday and I was a little wobbly and funked but she thought it was just the result of a week around toddlers wearing me out. However, as this week has progressed I’ve gotten more wobbly, my stomach has been super unsettled, and my back is more sore than normal. I just generally don’t feel well! Mom took me to see Dr. Gordon yesterday for bloodwork and an ultrasound but other than slightly elevated kidney and liver values, nothing really stood out. I’ll be going back next week for more bloodwork but while they try to figure out what’s causing me to feel gross, I’m starting anti-nausea meds, a liver support supplement and some pain killers to try to at least get me on a better path!! (Mom’s note: Poor kid just wants to sleep but, in a sure fire sign she REALLY doesn’t feel well, she insists on pacing half asleep if she cannot touch me, which is a dangerous occupation when she is this wobbly. So I grabbed my laptop and spent the day curled up on the couch next to my little one so she could sleep soundly. I suspect that is where you’ll find me for the next few days. I’m really worried about her right now but hopefully most of this is a cumulative reaction to the adjustments we made a week and a half ago to try to resolve problems with recurring diarrhea in combined with missing pt for a week while we were gone and generally being worn out from the excitement of a week away from home. We have rolled back some of those changes and have several other things to try, but it is SO hard to see her feeling so miserable in the meantime. On a positive note, she has kept all of her meals and meds down today, which is a step in the right direction!!)
I don’t feel well. Mom picked me up Sunday and I was a little wobbly and funked but she thought it was just the result of a week around toddlers wearing me out. However, as this week has progressed I’ve gotten more wobbly, my stomach has been super unsettled, and my back is more sore than normal. I just generally don’t feel well! Mom took me to see Dr. Gordon yesterday for bloodwork and an ultrasound but other than slightly elevated kidney and liver values, nothing really stood out. I’ll be going back next week for more bloodwork but while they try to figure out what’s causing me to feel gross, I’m starting anti-nausea meds, a liver support supplement and some pain killers to try to at least get me on a better path!! (Mom’s note: Poor kid just wants to sleep but, in a sure fire sign she REALLY doesn’t feel well, she insists on pacing half asleep if she cannot touch me, which is a dangerous occupation when she is this wobbly. So I grabbed my laptop and spent the day curled up on the couch next to my little one so she could sleep soundly. I suspect that is where you’ll find me for the next few days. I’m really worried about her right now but hopefully most of this is a cumulative reaction to the adjustments we made a week and a half ago to try to resolve problems with recurring diarrhea in combined with missing pt for a week while we were gone and generally being worn out from the excitement of a week away from home. We have rolled back some of those changes and have several other things to try, but it is SO hard to see her feeling so miserable in the meantime. On a positive note, she has kept all of her meals and meds down today, which is a step in the right direction!!)
The little dog that survived so much finally succumbed to what turned out to be an intracranial bleed. We did everything we possibly could, gave her every chance to recover, but it was more than even the amazing Ms. Rin could work through. There will be future chapters of TheBikerDog and I have many hours of ride footage, feeding tube adventures and candid photos from the amazing life of Rin that I have not shared yet. So stick around - I’ll start sharing those as soon as I wrap my brain around the fact she is actually gone. Right now… it just hurts.
The little dog that survived so much finally succumbed to what turned out to be an intracranial bleed. We did everything we possibly could, gave her every chance to recover, but it was more than even the amazing Ms. Rin could work through. There will be future chapters of TheBikerDog and I have many hours of ride footage, feeding tube adventures and candid photos from the amazing life of Rin that I have not shared yet. So stick around - I’ll start sharing those as soon as I wrap my brain around the fact she is actually gone. Right now… it just hurts.
Mom’s note: WOOHOO!!!!
Mom’s note: WOOHOO!!!!
Mom, who provides a safety barrier these days to keep me from falling off the couch, got up to go potty and my brother decided that dad sitting next to me was not enough and promptly placed himself in the barrier spot. I am well loved on all sides.
Mom, who provides a safety barrier these days to keep me from falling off the couch, got up to go potty and my brother decided that dad sitting next to me was not enough and promptly placed himself in the barrier spot. I am well loved on all sides.
Today was a great day. For the first time in three weeks I was able to get my full feed at each meal without any tummy trouble! I got to have a massage @thek9bodyshop and enjoy some sniffs from the car window. I even have enough energy and appetite left to play with my puzzle!!! So what if I’m a little slower than I was - it’s still FUN!!
Today was a great day. For the first time in three weeks I was able to get my full feed at each meal without any tummy trouble! I got to have a massage @thek9bodyshop and enjoy some sniffs from the car window. I even have enough energy and appetite left to play with my puzzle!!! So what if I’m a little slower than I was - it’s still FUN!!
Maybe I’ll feel like playing with the bones again someday, but today I just want to remember.
Maybe I’ll feel like playing with the bones again someday, but today I just want to remember.
Absolute perfection.
Absolute perfection.
Happy Halloween All! I wasn’t feeling great today so all I did was wear my bat wings to my cardiology appointment. But, in honor of the day, I thought I’d share a throwback to Mom’s favorite costume from a couple years ago. (Mom’s note: Ms. Rin is slightly better by the day, but still far from herself. She is on several new meds that seem to be helping and started antibiotics today for an infected feeding tube, so hopefully that will help a lot. Meanwhile her bloodwork is a bit improved and her cardiology exam showed that we are stable on that front, so that is a bit of good news at least! Just taking things a day at a time for now!)
Happy Halloween All! I wasn’t feeling great today so all I did was wear my bat wings to my cardiology appointment. But, in honor of the day, I thought I’d share a throwback to Mom’s favorite costume from a couple years ago. (Mom’s note: Ms. Rin is slightly better by the day, but still far from herself. She is on several new meds that seem to be helping and started antibiotics today for an infected feeding tube, so hopefully that will help a lot. Meanwhile her bloodwork is a bit improved and her cardiology exam showed that we are stable on that front, so that is a bit of good news at least! Just taking things a day at a time for now!)
Snoring the day away! (Mom’s note: It has been an up and down and up again sort of weekend but all in all, she seems much much much more comfortable. She is sleeping a ton but that’s not really a surprise. Neurologic symptoms are vastly improved. We haven’t seen any head pressing or circling at all, her balance is improved significantly, and she is pacing far less frequently. On the flip side, her stomach still seems to be quite unhappy, including an episode of obvious distress Saturday that required an additional medication (Ondansetron) to ease. Fortunately we had that on hand since our cat takes it daily, and it helped tremendously. We cannot completely fast her as she cannot get her meds on an empty stomach, but we did reduce her food intake yesterday to try to give her system a break and it seemed to help. Not only did she seem to have significantly less pain/discomfort during meal times, she actually took her meds orally, something she hasn’t done all week!! We will slowly increase her intake today so she doesn’t fall too far behind in caloric intake but we’ll probably break it up into a greater number of small meals rather than rush to go back to three full meals. For the moment, we are embracing every little improvement, snuggling a lot and hoping we will continue to see more improvement from here!!)
Snoring the day away! (Mom’s note: It has been an up and down and up again sort of weekend but all in all, she seems much much much more comfortable. She is sleeping a ton but that’s not really a surprise. Neurologic symptoms are vastly improved. We haven’t seen any head pressing or circling at all, her balance is improved significantly, and she is pacing far less frequently. On the flip side, her stomach still seems to be quite unhappy, including an episode of obvious distress Saturday that required an additional medication (Ondansetron) to ease. Fortunately we had that on hand since our cat takes it daily, and it helped tremendously. We cannot completely fast her as she cannot get her meds on an empty stomach, but we did reduce her food intake yesterday to try to give her system a break and it seemed to help. Not only did she seem to have significantly less pain/discomfort during meal times, she actually took her meds orally, something she hasn’t done all week!! We will slowly increase her intake today so she doesn’t fall too far behind in caloric intake but we’ll probably break it up into a greater number of small meals rather than rush to go back to three full meals. For the moment, we are embracing every little improvement, snuggling a lot and hoping we will continue to see more improvement from here!!)
(Mom’s Note: Right now Rin is napping in her cubby and I don’t want to disturb her for a photo, so this photo is from last Sunday when she was feeling a bit more herself. I just figured you all might like an update on my girl. She ended up at the ER last night with neurologic symptoms (head pressing, circling, drooling, uneven pupils). After much testing, we have a few hypotheses on what she has going on but the one thing conclusively determined is that she is hyper coagulating (blood clotting too fast). To combat this we added a second blood thinner to her pharmacopoeia. Then, to address her ongoing GI upset we are temporarily stopping her psyllium husk in addition to having added an anti nausea (Cerenia) and a gastroprokinetic (Cisapride) yesterday with lunch. Finally, we have completely stop Gabapentin as it did not help with pain and was mucking up our ability to see what her actual neuro symptoms were. Between all of these things she has improved a lot: she is no longer head pressing or circling and she is actually lifting her head a bit. We are waiting to hear from CASE as to what is next: it may be wait and see for a few days or we may take her for a ct scan. For now, she is home and sleeping comfortably.)
(Mom’s Note: Right now Rin is napping in her cubby and I don’t want to disturb her for a photo, so this photo is from last Sunday when she was feeling a bit more herself. I just figured you all might like an update on my girl. She ended up at the ER last night with neurologic symptoms (head pressing, circling, drooling, uneven pupils). After much testing, we have a few hypotheses on what she has going on but the one thing conclusively determined is that she is hyper coagulating (blood clotting too fast). To combat this we added a second blood thinner to her pharmacopoeia. Then, to address her ongoing GI upset we are temporarily stopping her psyllium husk in addition to having added an anti nausea (Cerenia) and a gastroprokinetic (Cisapride) yesterday with lunch. Finally, we have completely stop Gabapentin as it did not help with pain and was mucking up our ability to see what her actual neuro symptoms were. Between all of these things she has improved a lot: she is no longer head pressing or circling and she is actually lifting her head a bit. We are waiting to hear from CASE as to what is next: it may be wait and see for a few days or we may take her for a ct scan. For now, she is home and sleeping comfortably.)
I don’t feel well. Mom picked me up Sunday and I was a little wobbly and funked but she thought it was just the result of a week around toddlers wearing me out. However, as this week has progressed I’ve gotten more wobbly, my stomach has been super unsettled, and my back is more sore than normal. I just generally don’t feel well! Mom took me to see Dr. Gordon yesterday for bloodwork and an ultrasound but other than slightly elevated kidney and liver values, nothing really stood out. I’ll be going back next week for more bloodwork but while they try to figure out what’s causing me to feel gross, I’m starting anti-nausea meds, a liver support supplement and some pain killers to try to at least get me on a better path!! (Mom’s note: Poor kid just wants to sleep but, in a sure fire sign she REALLY doesn’t feel well, she insists on pacing half asleep if she cannot touch me, which is a dangerous occupation when she is this wobbly. So I grabbed my laptop and spent the day curled up on the couch next to my little one so she could sleep soundly. I suspect that is where you’ll find me for the next few days. I’m really worried about her right now but hopefully most of this is a cumulative reaction to the adjustments we made a week and a half ago to try to resolve problems with recurring diarrhea in combined with missing pt for a week while we were gone and generally being worn out from the excitement of a week away from home. We have rolled back some of those changes and have several other things to try, but it is SO hard to see her feeling so miserable in the meantime. On a positive note, she has kept all of her meals and meds down today, which is a step in the right direction!!)
I don’t feel well. Mom picked me up Sunday and I was a little wobbly and funked but she thought it was just the result of a week around toddlers wearing me out. However, as this week has progressed I’ve gotten more wobbly, my stomach has been super unsettled, and my back is more sore than normal. I just generally don’t feel well! Mom took me to see Dr. Gordon yesterday for bloodwork and an ultrasound but other than slightly elevated kidney and liver values, nothing really stood out. I’ll be going back next week for more bloodwork but while they try to figure out what’s causing me to feel gross, I’m starting anti-nausea meds, a liver support supplement and some pain killers to try to at least get me on a better path!! (Mom’s note: Poor kid just wants to sleep but, in a sure fire sign she REALLY doesn’t feel well, she insists on pacing half asleep if she cannot touch me, which is a dangerous occupation when she is this wobbly. So I grabbed my laptop and spent the day curled up on the couch next to my little one so she could sleep soundly. I suspect that is where you’ll find me for the next few days. I’m really worried about her right now but hopefully most of this is a cumulative reaction to the adjustments we made a week and a half ago to try to resolve problems with recurring diarrhea in combined with missing pt for a week while we were gone and generally being worn out from the excitement of a week away from home. We have rolled back some of those changes and have several other things to try, but it is SO hard to see her feeling so miserable in the meantime. On a positive note, she has kept all of her meals and meds down today, which is a step in the right direction!!)